Strong and Steady

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One more picture before the dash to LAX

One more picture before the dash to LAX

Today was an eventful day.  Trish and I drove down from Santa Barbara with Grandpa Dick and Grandma Jo and swung by the hospital for a quick visit before seeing them off at LAX.  They enjoyed a chance to hold Rudy and say goodbye.

 

Our little warrior keeps making progress on his breathing.  Today’s plan was for three 3-hour sprints.  He made it through the first one effortlessly, but was a bit riled up on the second so we had to cut that one off halfway through.  Perhaps our presence can make him a little bit agitated and it can take some intervention to get him calmed down.  As I write this he’s got about 45 minutes left on his 3rd sprint so Trish and I are sitting here calmly and he’s cruising on through it without much fuss.  The plan is to give him one more day of exercise tomorrow with three-hour sprints and then pull the tube on Monday.  So, please pray for continued strength for Rudy leading up to that so he can successfully transition off the ventilator.

 

The team is continuing to take blood samples for bacterial cultures each day.  One set from two days ago started to show a little growth so Dr. Robert has changed up some of the antibiotics to stay on top of that.  Infections come with the territory with extended ICU situations so we’re not overly concerned at this point as Rudy is not showing extreme symptoms, but please pray that the steps the team is taking would hold things at bay.

 

All this brings me to the major highlight of the day (if not the week).  We were visited today by Alan and Vickie Manning.  Followers of Rudy’s Beat are likely aware of their journey (click here for their blog).  As we have drawn such comfort from reading their blog and exchanging e-mails, it was very emotional to meet them.  There was much to talk about and probably even more that didn’t need to be said.  Alan and Vickie are heroes to us as they’ve come face-to-face with the same monster and know the lay of the battlefield.  They’ve been pushed to a place of having to make the most difficult decisions parents need to make and know that even the most excellent medical care can’t fix everything.

 

The five hours together flew by so quickly.  Faced with a condition that strikes only 3 out of every 10,000 kids, it was a comfort to be together with people who spoke our language.  We laughed over our parallel experiences in ICUs at opposite sides of the country.  It might only be a small minority of people who have spent enough time in such places to find the humor therein—the rest of the population is often rightfully terrified.  Thank you, Alan and Vickie, for your courage and perspective; we are grateful for your friendship and encouragement.  When speaking of Katie’s passing, one thinks instantly of your loss—but I also come away grieving what Katie lost in only having you as parents for such a short time.

 

Allan and Vickie cheering on Rudy

Allan and Vickie cheering on Rudy

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7 Responses to “Strong and Steady”

  1. Bonnie Lisama Says:

    What great news & what a wonderful treat to meet katie’s parents.
    Will keep praying for Rudy and know that great things are just around the corner now. God Bless you little one.
    Hugs & Kisses.

  2. Oma + Opa Says:

    keep up the sproint little fighter.
    we love you.
    Thanks you Vicki and Allan for your support and care.
    Oma and Opa

  3. Uncle Steve Says:

    What a blessing to meet Alan and Vickie. Your journey has brought so many new relationships. I know God is using these relationships to bless you and, I’m sure, for you to be a blessing.

    We welcomed Mom and Dad back to 15 degree weather in Kansas. So glad they got to spend the past month with you all. I’m praying that we can all be together in the near future (Rudy, get your running shoes ready for July!)

  4. Liz Horvath Says:

    I am so happy that you have been able to meet Vicky and Alan. Arent they incredible seeing them at Rudys bedside really has made the tears flow. Its amazing the bonds and friendships you make . I trully am inspired by the strength both of your families have. Give Rudy a big kiss for me!

  5. Logan, Kaelee, Emma, Brett and Rayme Says:

    Im so glad that Vicki and Alan were there for a visit. I know how powerful it must have been to have them there. Only parents that go through these moments in life truly understand. We are thinking of you all and looking forward to hearing the Monday news. We are sending all our love and positive thoughts! We love you guys! Go Rudy Go!!

  6. Dawn Bettencourt Says:

    I often log onto Rudys site to see how he is doing, also check Katie’s everyday, surprised with todays readings…….only have known Vicki and Alan for a short time, they are amazing……continue to pray that there is no HLHS someday, and if so…..that the miracles of medicine can fix all their needs…….we are blessed with a soon to be 10yr. old grandson, with HLHS…..he has done well, but we know everyday is a blessing……we pray for all……….Dawn’s Mom

  7. Dawn & Steve Bettencourt Says:

    I’m not sure I have the words to express myself well tonight. I’m a parent who has lived through an HLHS experience with my Nicholas and while each child is unique, each parent shares so many of the same emotions. Mine have been put into the past for so many years. Following Katie and Rudy brought back so many memories. But in the end, I believe more than ever before that today is what matters most. This weekend we joined our church youth on a ski trip and brought Nick along to try snowboarding. I thought is was a crazy idea, but I want him to feel free to conquer anything. I pray for Rudy to feel free to conquer anything in his life…walking, talking, eating…and onto bike riding, swimming and snowboarding! Rudy…right now, take on the ventilator and win!

    Prays for strength…

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