Homage to a Hero: Dr. Dan Levi

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Another one of the people who have been such an encouragement along the way.

 

Upon learning of Rudy’s diagnosis, the efforts I made to research HLHS treatment at UCLA led me to the Pediatric Cardiology website.  As I looked for points of contact, I came across Dan Levi’s webpage where two things caught my eye:  a title listing him as Director of the Pediatric Cardiology Fellowship and an undergraduate degree from Stanford.  I confess I’m not a very good alum and can’t remember a time I played the alma mater card (after all, it might not mean anything more than my dad and his writing a lot of checks to the same place 20 yrs ago), but it was worth a shot if it served to give me some leverage with someone in authority in the place my son needed treatment.  So I sent an e-mail explaining our diagnosis, asked what treatment might look like at UCLA and closing by pointing out our common Stanford tie but making it clear that this didn’t imply any inappropriate obligation.

 

The next day, just minutes after I got a “GO CARDINAL” e-mail telling me he would be calling shortly, Dan rang me on my cell phone.  Consistent with the conversation I had a day earlier with Gary Satou, I found comfort in speaking to someone knowledgeable in the scary mystery thrust on us.  Dan had good information, wise counsel and, more than anything, apparently as much time as I needed to ask questions and have information repeated.  He informed me of the steps UCLA had taken recently specifically in bringing on Brian Reemtsen to handle cases like ours.  He made it clear that I should contact him via phone or e-mail at any time if I had need.

 

Rudy’s early arrival prevented any chance of us having a chance to get acquainted ahead of time, but shortly after Rudy was placed in the CTICU, I met Dan in person.  I’m beginning to fear conversations with Dan as with each one we land on another common connection:  Stanford, people at Stanford, his parents live in SB, I’m acquainted with his aunt and uncle, we were born in the same town in NJ…I fear we’re not far from discovering that I bullied him at summer camp or egged his car in high school.

 

We’ve discovered so much about each other because Dan is personable and makes a point of stopping by and checking on us about as much as he checks on Rudy.  Right now, he’s not directly involved in Rudy’s care but, like most around here, seems to keep tabs on the Norwood patient.  There have been a few days where he’s come by and made mention that he wasn’t actually on floor duty.  Before we could compliment him on his dedication he explained, “I only come up here because the tea is free and buying it downstairs everyday would be really expensive.”  Given my reputation in every place I’ve worked of making excuses to drop by offices with free coffee and tasty snacks, I applaud Dan.

 

As Monday was a particularly rough day that left us unsettled, Trish and I were touched that he made a point of stopping in quickly just to offer some empathy stating “I don’t want to come by when things are only going well”.  In the years ahead, his specialty of heart catheterization will have him involved with some of Rudy’s key procedures down the line.  We’re grateful that coming back to UCLA for these will not only be a chance to receive excellent care, but a chance to see a friend.

 

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14 Responses to “Homage to a Hero: Dr. Dan Levi”

  1. Uncle Steve Says:

    What a blessing to hear how God has worked this all out….to think that you were so torn at the thought of having to go to UCLA over Children’s! Kudos to you, Rolf, for your persistence in making the contacts and investigating the path that God was directing you on. Your dogged engagement in this whole process of lining up care for Rudy is a great example of a father’s commitment to to his children. You are a poster dad for responsible fathering!

  2. Maria Says:

    Glad to hear about another amazing person on Rudy’s team. Of course, the most amazing ones are Rolf and Trish! It’s a blessing to read your posts — you both share your hearts so beautifully. And we do learn more and more about you two (you might have egged his car — really?!?). I’m thankful for a quiet day for all three of you — praying for another one like it.

  3. David & Sherry Sanders Says:

    Glad things have calmed down for Rudy (and you both). Hope to see you soon. Have a safe trip.

  4. Uncle Alex and family Says:

    Praise God! Have a good trip home Rolf. We’ll be praying for safe travel and a quiet time for Rudy and Trish.

  5. Santises Says:

    God is God but youtta man! — Enrique

  6. Faye and Don Says:

    Praise the Lord for hearts like Doctor Dan. How special of the Lord to put him in your lives, and you in his. He has become a very special friend and how good to know that he will be there down the line when Rudy needs him. Dear little Livy..yes, tears come and tears go…how prophetic out of the mouths of babes…but they do go and sometimes they come as the song says, “He washed my eyes with tears that I might see…” Thank you Lord for giving us a glimpse of Your mercy and grace through these precious people. We do love you and pray for all of you! Faye and Don

  7. Move over, Kevin Bacon… « Rudy’s Beat Says:

    [...] over, Kevin Bacon… You might recall in my recent post on Dan Levi that I joked that I was waiting for the next “small world” connection we would [...]

  8. Norris and Barry Goss Says:

    As Dr. Dan’s aunt and uncle we have always known Dan was a special talent, blessed witiih brilliance, humor, and a HUGE heart for friends, relatives, and now patients and their families. Thank you for this testimonal to him. We’ll continue to pray for your whole family as well as the amazing work you, Rolf, guide at the Rescue Mission.

  9. David Goss Says:

    Great blog, Rolf. I sure look forward to meeting you. As Dan’s cousin I must say this type of quality care and deep empathy (with HUMOR) is par for the course with Dan. I hear you are speaking at FMCSB this Sunday as well. I am sorry I will miss that.
    Blessings,
    Dave

  10. 3:20–off to the lab « Rudy’s Beat Says:

    [...] to say that they came to pick Rudy up for the cath procedure.  He’ll be sedated and then Dan Levi will go with a scope up through an artery in his groin to his heart so they can get a very detailed [...]

  11. Another reason to love Dan Levi « Rudy’s Beat Says:

    [...] Rolf I failed at masking my disbelief when, at our last appointment, Dr. Harake reported that Dr. Dan was coming to Santa Barbara to run in a road race.  Don’t get me wrong–he’s a [...]

  12. Cath Recap « Rudy’s Beat Says:

    [...] made the time go quickly and at 11:30 Dr. Harake came to get us so we could sit down with him, Dr. Dan and Dr. Brian to go over what they found on the cath.  The good news is that the heart looks very [...]

  13. Marnie Ashford Says:

    Dr. Dan is my daughters doctor, and we have been so grateful for his personal caring and medical care!!!! He has really gone above and beyond for us as well, even visit us at Children’s hospital when she had a surgery there. Dan and UCLA saved my daughter! We continue to thank God every day! Many prayers for Rudy,

  14. download vimeo videos online Says:

    Hey there would you mind sharing which blog platform you’re using? I’m going to start my own blog soon
    but I’m having a difficult time selecting between BlogEngine/Wordpress/B2evolution and Drupal. The reason I ask is because your layout seems different then most blogs and I’m looking for something unique.
    P.S Sorry for getting off-topic but I had to ask!

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